Families affected by the tragic condition known as Sudden Infant Death Syndrome (SIDS) have spoken out about their experiences after a new study suggested scientists are close to identifying a cause.
SIDS is the sudden, unexplained death of a baby younger than one year of age that does not have any apparent cause. The disorder is sometimes referred to as "crib death" or "cot death" since it is associated with the time when the baby is sleeping.
SIDS is the leading cause of death among babies aged between one month and one year, with the vast majority of deaths taking place before a baby reaches six months of age, according to the National Institute of Health states. Each year there are about 3,400 cases of sudden unexpected infant deaths in the U.S. according to the Centers for Disease Control and Prevention (CDC), a classification that includes SIDS.
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By definition, the cause of SIDS is unknown. The condition can be painful for bereaved parents who are left without answers.
Some evidence has suggested that infants who die from SIDS had a brain condition affecting nerve cells that might control vital functions like breathing and heart rate, but other possible factors had also been identified.
Scientists have now pinpointed a chemical known as Butyrylcholinesterase (BChE), the activity of which they found to be significantly lower in babies who died of SIDS compared to living infants or those who died of conditions other than SIDS.
The finding could mean that doctors will be able to identify infants at risk for SIDS prior to death and open up new research into prevention.
The study has proved extremely popular on Twitter, where it was hailed as an important scientific breakthrough. One tweet describing the research had gained more than 60,000 likes and well over 1,000 comments as of Friday.
They found the cause of SIDS
THEY FOUND THE CAUSE OF SIDSExcuse me while I cry for all the parents, including lead researcher Dr Carmel Harrington, who lived with guilt. And cry happy tears for parents in the future who will have access to screening and prevention. 😠pic.twitter.com/LCp4A63HXd
— Debbie Mia (@TheDebbieMia) May 12, 2022
The news prompted several Twitter users to speak out about their own experiences of losing loved ones or their own children to SIDS.
kathykiiscool wrote that she lost her first son at 38 weeks in what doctors said was SIDS in utero, adding that "the tech cried while doing the ultrasound".
"Although my SIDS happened in 1991 the emotion and pain is still there," she told Newsweek.
She said she "never really got answers" when she lost her infant to SIDS when she was just 19. "I am thankful that there are people trying to understand what causes SIDS to happen," she added.
I lost my first son at 38 weeks, told SIDS in utero. Felt movement on Wednesday, very little movement Thursday (19 years old, 1st pregnancy) told IT'S NORMAL, Friday at doctors appointment no heartbeat, the tech cried while doing the ultrasound
— kathyking (@kathykiscool) May 13, 2022
Getvalentined wrote that her mother lost a baby sister to SIDS more than 50 years ago and that her family "never recovered". She told Newsweek: "The breakthrough will certainly help save a lot of babies—but I don't think people realize how many families it will save too."
My mom lost a baby sister to SIDS over 50 years ago. Her family never recovered, and what her parents did to cope haunts her to this day. I hope that this discovery means that, eventually, no other family has to go through what hers did.
— nashi/valentine ♡ THEY KIDNAPPED HER FOR VIEWS?! (@getvalentined) May 13, 2022
The new SIDS study, titled "Butyrylcholinesterase is a potential biomarker for Sudden Infant Death Syndrome," was published in the journal eBioMedicine on May 6.
